Just got back tonight from another visit to Houston. I flew down on Wednesday night on what has become the same set of flights as almost all of my visits to M.D. Anderson. Upon arrival I was given a gigantic, white police car (i.e. crown victoria) to drive around instead of the tiny economy I [...]
I returned from Houston last night after a two-day trip for essentially one appointment at M.D. Anderson. As you may remember from my last visit, they recommended a PET CT scan for a better look at the area of concern in my brain. After speaking to the team in Minneapolis who doesn’t do these types [...]
I’m back from Houston — returning home on Saturday with Mom after an incredibly packed visit. Every last minute of it seemed scheduled, with 16 appointments spread across only two days at the clinic. It barely left room for Amy’s ice cream. Over the past few weeks I had been doing a pretty good job [...]
Hello everyone! Thought I’d update the site with some recent medical stuff to get you in the loop. I had been doing pretty well lately, with only occasional seizures which were very minor, along with some migraines. In the last couple of weeks I started having an increased frequency of what are generally very quick [...]
Today was a bit of a zoo. It was a frenzy of appointments, waiting for more appointments, meeting new doctors, genetics specialists, and nurses. But it’s finally done, and we finally have a game plan. I first met with Dr. Slopis, who is a neurologist. He gave yet another exam on hearing, vision, etc., then [...]