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Tumors or Radiation Necrosis

I have an update on the current plan for treatment that I wanted to share with you all. I received a call from Dr. Weinberg, my surgeon at M.D. Anderson who removed my original brain tumor. He was on vacation last week, so we weren’t able to connect with him when I was in Houston. [...]

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September 2009

I just returned from my 3-month visit to Houston. I was scheduled for the standard blood work, MRI and visits with my two main doctors (Wolff and Slopis), along with some additional meetings for Li Fraumeni syndrome. The tests were all scheduled for Thursday, so I flew down on Wednesday afternoon to a ridiculously humid [...]

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PET CT Brings Good Results

I returned from Houston last night after a two-day trip for essentially one appointment at M.D. Anderson. As you may remember from my last visit, they recommended a PET CT scan for a better look at the area of concern in my brain. After speaking to the team in Minneapolis who doesn’t do these types [...]

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ABC News Article

Just a quick update to share an interesting article that ABC News wrote about a few childhood cancer survivors and the importance of follow-up care as we’ve grown. Click Here Also – just an update to let you know that I’m still working on additional scans. It’s been a bit difficult to get things lined [...]

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Houston May 2009

I’m back from Houston — returning home on Saturday with Mom after an incredibly packed visit. Every last minute of it seemed scheduled, with 16 appointments spread across only two days at the clinic. It barely left room for Amy’s ice cream. Over the past few weeks I had been doing a pretty good job [...]